Purpose

PROMIS® (Patient-Reported Outcomes Measurement Information System) is a joined CTSA-CRIO program which provides dynamic tools to measure health outcomes from the patient perspective. These tools are comprised of highly reliable, precise measures of patient-reported health status for physical, mental, and social well-being. This resource can be used to measure health symptoms and health-related quality of life domains such as pain, fatigue, depression, and physical function, which are relevant to a variety of clinical trials supported at Mount Sinai.

Overview:
PROMIS was established in 2004 as a NIH-funded initiative to develop and validate patient reported outcomes for clinical research and practice. It developed into a cooperative network that has had a substantial impact, with approximately 70 domains measuring pain, fatigue, depression, anxiety, sleep disturbance, physical function, social function, and sexual function, among other areas, available for use today. Measures were developed for children and adults, and has been translated into >40 languages (including English and Spanish). The work surrounding PROMIS has resulted in over 400 publications. More than 100 NIH grants have supported investigations using PROMIS instruments. PROMIS is available in a variety of forms, including paper and pencil, web and mobile platforms, as well as via electronic health record (EHR) data capture.

Learn More

An example of the forms CRIO is currently able to implement in REDCap is found here.

Instructional Videos

NIH PROMIS Overview
https://www.youtube.com/watch?v=Nzwo58i0PhU

Basic Introduction PROMIS
https://www.youtube.com/watch?v=3d4e4RgvVVY

PROMIS Measures
https://www.youtube.com/watch?v=DV-V2s8uy3I

Interpreting PROMIS Scores
https://www.youtube.com/watch?v=1DUzpqqcdyo

PROMIS Data Collection
https://www.youtube.com/watch?v=H1EWU0RJYL0

PROMIS®-29 in the Clinic
https://www.youtube.com/watch?v=cGkqeQJ5Nqs

PROMIS Benchmarking
https://www.youtube.com/watch?v=QmWwhJp71Z8

Meaningful Change in PROMIS Measures
https://www.youtube.com/watch?v=5MSUEEYv7UY

Office

Office of Chief Research Informatics Officer (CRIO)

Access

To make a service request and for additional help, open a Support Ticket.

Cost

Free

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